What a year! I survived GRAVES DISEASE!

Me visiting the ruins of Tulum in Mexico back in July 2016.

I can’t believe it’s been almost one year since RAI! A year ago, I was depressed, scared, worried about how things would end up. But then one day, I said, “no mas.” (Spanish for no more.) No mas worrying. No mas letting this disease control me. There was nothing I could do but to accept Graves Disease and welcome it into my journey.

What a difference a year makes. This has been MY YEAR because I seriously kicked Graves Disease in the ARSE! In fact, THANK YOU GRAVES DISEASE FOR MAKING ME STRONGER! And I genuinely mean that.

So here’s the latest update one year POST RAI –

  • Pain in my eyes has gone away
  • It’s been difficult keeping my TSH in check. I’m currently on 125 mcg of Synthroid. My last test came back in the 4 range, but I need to bring it down to 2 or below if I plan on having babies. I was drinking Maca Root powder with coconut milk everyday a few months ago. During this time, my TSH would test normal. I stopped taking it, my TSH went up again. I may start again but admittedly I got lazy taking it everyday therefore I don’t want to depend on it. I’ll do a future post on Maca Root and the benefits it has for those with hypothyroidism.
  • My weight- Admittedly, I was worried about gaining weight. In fact, around this time last year, I was shopping for larger clothes, thinking I would grow into them. I’m happy to report that I’ve maintained the same weight prior to my diagnosis. I’m 133.  I do exercise and try to watch what I eat (although I find this very difficult at times.) When I tend to go crazy with the food, I do notice I gain weight but it easily comes off.
  • Meditation and yoga have helped me!
  • I sometimes get very tired and sometimes feel a little depressed, but that’s because of fluctuations in hormones. It’s not too bad, and I imagine once I’m permanently in range, it’ll go away.
  • I’ve learned to be more grateful and I’m teaching myself how to better cope with stress (so I don’t find myself with another autoimmune disease)

Wishing you lots of health, love, and prosperity for 2017. Please share your story below.

I am not a doctor and the content on this blog is not medical advice. This is simply my experience with Graves Disease, and all thoughts expressed on this blog are my opinions. Please consult a doctor if you think you have Graves Disease or prior to taking any action that may affect your outcome with Graves Disease. You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website.

6 thoughts on “What a year! I survived GRAVES DISEASE!

  • I just found out I have Graves and i’m 28 and I can say i’m very scared and feel as if my mind is just everywhere. I’m grateful for these site and I guess my search and reading beginnings

    • Miss Mae, you got this! It’s the beginning a difficult journey, but you will come out winning in the end. 😀

  • Hello! So its been 12 weeks and alls been well apart from one eye is a little watery and sore…i had a couse of steroids and dr is thinking about putting me on another course…did you have any problems after RAI with your eyes?

    • Hi Debbie! Thanks for stopping by! Like you I was also on steroids during RAI. Prior to RAI, I had very, very mild TED. Watery and a bit red, but nothing too bad. After RAI, I get this weird sharp pain around my right eye, which lasted for a while, probably as long as it took me to get my TSH and T4 in check. I no longer have eye symptoms, but I’ve noticed when I’m stressed or if my levels are off, the pain reappears. I recommend making an appointment with a neuro-opthomolagist (totally butchered that word) who has experience with Graves to get checked out. Also since your at 12 weeks, has your TSH/T4 been checked? Super important that you see a doctor immediately and that you begin Synthroid as soon as possible if you’ve become hypothyroid. Not addressing the hypothyroid part after RAI can lead to complications with TED. I wish you the best of luck and would love to hear back from you and see how you’re doing! Wishing you lots of love and light during your Graves journey. You got this girl! The worst part has past!!!

  • Thank you for your wonderful blog! I was terrified to have Rai however I had it 5 days ago. And your story has been so helpful. Like you I have been put on steroids for my eyes. So far so good but its early days.

    • Hi Debbie! Thank you for sharing. I wish you the best of luck with your Graves journey. Just hang tight, you’re almost through with the worst of it. Please check in and let us know how you’re doing. It makes me happy to hear that you found this blog helpful.

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