UPDATE – Five Months Post RAI

(Photo: Kashi Ashram, Sebastian, FL.)

Sorry it’s been so long since my last post, but a lot has happened since. I joined the Synthroid club last time I checked in, and to date, my levels are still not within range. I have seen steady improvement, so I’m hoping that the recent increase of Synthroid will finally put me in range. I’m up to 112 MCG, (started at 88 MCG, then I was bumped up to 100 MCG).

My T4 tested within range immediately and is currently at 1.4, but my TSH has been all over the place. (Chart courtesy of Quest Diagnostics via the MyQuest app. If you use Quest for your lab work, make sure to sign up for My Quest so you can get access to all your labs, which IMO is the best thing ever.) 

TSH ranges

The spike in TSH back in May was probably due to the fact that I had started taking a multi-vitamin around that time that had calcium in it. I was taking it within four hours of taking Synthroid, and as we all no, you cannot take any calcium or iron supplements within four hours of taking Synthroid. Oops, my bad. I’m hoping next time I get tested, my TSH will be within range.

Eyes

My eyes have been ok. I experience this sharp pain around my right eye, which my doctor at Bascom Palmer believes may not be related to TED. It’s usually the most painful at night, when I’ve been in front of a computer screen all day long. I’m starting to think it’s stress related as well, but they’re doing a head scan in a few weeks, just to make sure there’s nothing else going on in there. I’ll keep you posted.

For most Graves patients, dealing with TED, or the possible occurrence of TED, is usually the most stressful part of the disease. I can’t tell you how many times a day I’d look at myself in the mirror, to see if there was anything funny going on with my eyes. I was depressed and driving myself crazy, and I’m sure it’s something we all experience. I promise that dealing with Graves gets better. It’s been almost a year since my diagnosis and I no longer worry about my eyes. I’ve come to accept the disease – which by the way does not define who I am.  Instead of being angry and upset, I’ve embraced and welcomed Graves, but at the same time, I made it very clear that it will not wreak havoc on my eyes.  Yoga has helped me with this, and I’ll tell you more about it in future posts.

Weight

I also told Graves that it would not affect my weight. And guess what, it’s worked! I’ve gained all the weight I lost, but I have not gained any more than that. I’m currently 130lbs. and have been so consistently for the last few months. I’ve had to do my part, though. I eat relatively healthy during the week, minimal gluten, no more than 30 grams of carbs and I exercise. Twice a week I go to Orangetheory (which I LOVE!) and I do yoga at least 3 times a week.  (Before you begin an exercise program make sure you have clearance from your doctor. When I was first diagnosed, I was on the brink of having a heart attack, so make sure you are healthy enough to exercise.)

That’s my update for now. More posts to follow soon. Feel free to comment below and share your Graves story.

I am not a doctor and the content on this blog is not medical advice. This is simply my experience with Graves Disease, and all thoughts expressed on this blog are my opinions. Please consult a doctor if you think you have Graves Disease or prior to taking any action that may affect your outcome with Graves Disease. You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website.

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