It’s been a while since my last update, but I had my first check-up today since the RAI treatment and I got the good news. . . I’m officially hypo! I can’t believe six weeks have come and gone.
Up until two weeks ago, I was still experiencing hyper symptoms. They were not too severe, but mostly manifested in sleepless nights, shaky hands, muscle and joint pain with some tachycardia here and there. Then two Fridays ago, I just felt better. Like whoa… I’m back.
I was expecting to start feeling some of the hypo symptoms, but as of now, nada. I feel great, which made me think I wasn’t hypo yet. But my lab results confirmed that the radioactive iodine worked, and I’m now a member of the Synthroid club. #HighFive
Here’s a summary of my RAI experience in general:
- I do not regret taking the Prednisone to protect my eyes. My right eye has been giving me some minor discomfort, which really ramped up right after the RAI treatment. I truly believe the Prednisone (20 mg for 6 weeks after RAI) prevented it from getting worse. I did not gain any weight while on Prednisone (just 5 lbs during the last two weeks.)
- Minimal weight gain, I went down to 123 lbs. and I’m currently at 128 lbs. I was expecting to gain more while on the steroids. I’ll let you know how that continues to go.
- Return of hyper symptoms were no fun, and had symptoms throughout weeks 2, 3 and 4. Week 5 felt much better and continue to feel much better although I’m hypo.
- At first I regretted doing the radiation, but now I don’t so much. It’s just a matter of being patient and hanging in there. Expect a rollercoaster of symptoms, emotions, and a whole lot of thyroid rage and just hold on.
Here are my lab results post radiation:
- T3 41 (Range: 76-181)
- Free T4 .6 (Range .8-1.8)
- TSH 33.85
And so the start of a new journey, but hey, it’s better than the alternative. Would love to hear your post radiation stories. Please comment below.I am not a doctor and the content on this blog is not medical advice. This is simply my experience with Graves Disease, and all thoughts expressed on this blog are my opinions. Please consult a doctor if you think you have Graves Disease or prior to taking any action that may affect your outcome with Graves Disease. You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website.